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Caring at Home

Some babies require the facilities of the Special Care Baby Unit only until breathing and feeding are established. These babies can then transferred to a ‘baby ward’, and parents may have the option of taking a baby home when hospital care is not required. Specialised support should be arranged together with a structured care plan to prepare a family for problems that may arise. A care plan must be flexible to the changing needs of the baby or the family. 

Social Care Supports

Families often don't know that they might be entitled to Social Care support to help them care for their baby or child at home.  In all areas of the UK, there are circumstances in which disabled children meet the criteria for support from social work services.  Supports can include things like carers coming into the home to help with care tasks, carers taking young people out to an activity, or respite services. 

In Scotland, Carers themselves have a right to assessment of their support needs.

Newlife have produced a handy to guide to help families start to get their heads around the potential for Social Care services to support them. It is available from their website.

Moving and Handling Needs

Many children as they grown will start to have Moving and Handling Needs.  Its important for both children and their carers that everyone supporting them knows how to move them safelty. The Scottish Government has produced a guide to the Moving and Handling of Young People.  This is designed as an easy read guide for anyone supporting disabled young people.  

Hospice Care

If there is a Children’s Hospice in your area, they may be able to provided ‘home from home support’. Families taking a baby home should be informed about physiotherapy, respite and shared care, and state allowances.

 

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