Introduction
Welcome to our SOFT UK Family Day, funded by The National Lottery Community Fund. This year we came together in Birmingham and welcomed our community to hear from guest speakers, catch up and network, and most of all, remember and celebrate our children.
The day was also captured in video and on this page you will find the different sessions available to watch on demand, along with a gallery of photos captured on the day.
We can’t wait to see you all at our next event!
As part of our professional networking session hosted by SOFT UK, Medics For Rare Disease present an incredible talk regarding communications.
We are kindly joined my Dr Lucy McKay, CEO, Medics for Rare Disease, to hear this incredible presentation.
To find out more, visit: https://www.m4rd.org/
Live Rarebinar: Words That Matter: Preparing Professionals For Conversations In Rare Disease
Looking Back
In this video, Shaun Dowdall, Charity Director for SOFT UK, will be talking about the last 18 months of SOFT UK.
We will be talking about our regional days, new database, Rarebinars, and much more.
During this session we will be talking to some of our past and future fundraisers, hearing their stories, what inspires them, and what they have planned next.
We will also be talking about our very first annual fundraiser taking place this year and hope that you’ll consider joining us.
To register for the run, visit: https://wkf.ms/42nDvdN
Fundraising Panel
Awards and Recognition
In this session SOFT UK are proud to present our awards ceremony, recognizing incredible work, effort, and contribution in the Trisomy community.
These awards were nominated by our incredible community.
In this video, Sonia, mum to Liyana, will be bravely talking about her pregnancy, birth, and the passing of her daughter.
Liyana was diagnosed with Trisomy 13 and lived for 5 weeks. Despite her diagnosis, Sonia shares her loving memories that she and her family share, and how she has reframed her experience.
Remembered With Love
Remembrance Ceremony
In this session, Sarah Dowdall will be reading a powerful poem suggested by our community as we remember and celebrate the lives of our Trisomy children.
