SOFT UK Advisers
At SOFT, we are fortunate to work with dedicated advisers who play a crucial role in supporting our organisation's mission of providing resources and support to families affected by Trisomy 13, Trisomy 18, and related conditions. Our advisers are not only experts in their respective fields, but they are also committed individuals who are passionate about making a difference in the lives of those affected by these conditions.
Our advisers play a critical role in supporting SOFT UK in producing our materials and training resources. They provide valuable feedback and insights that help us create resources that are both informative and relevant to our community.
Overall, we are incredibly grateful for the support of our advisers and the invaluable contributions they make to our organisation and the families we support. Their commitment, dedication, and expertise are a vital part of the SOFT UK community, and we could not do what we do without them.
Alison Brett, Bereavement Midwife, Ipswich Hospital, Suffolk
Erica Brown, Vice President of Acorns Children’s Hospices, West Midlands. Research Fellow in Children and Young People's Palliative Care, Coventry University.
Deborah Bruns, Ph.D., Principal Investigator of the Tracking Rare Incidence Syndromes (TRIS) project and Professor, School of Education, Southern Illinois University, USA
Professor John Carey Geneticist and Paediatrician. Medical adviser and founding professional for SOFT USA
Dr Lucy Kean Consultant Obstetrician and Subspecialist in Fetal Medicine, Nottingham University Hospitals.
Dr Una MacFadyen Consultant Paediatrician and Neonatologist, Forth Valley Royal Hospital.
Professor Joan Morris Professor Medical Statistics, Primary Investigator on the EUROlinkCAT Study, St George’s University, London
Barbara Rosenthal MBACP Counsellor in private practice. Trainer and Supervisor for Cruse Bereavement Care.
Dr Nora Shannon Consultant Clinical Geneticist, Nottingham City Hospital.
To read more on our Advisors take a look at their blog posts to give you an insight to how they have been involved with SOFT UK.