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Many babies with Edwards’ or Patau’s syndrome will spend some time being cared for in the neonatal unit in hospital.  This is usually because either they have a low birth weight or they are having medical difficulties that require treatment.

If your baby was diagnosed antenatally, you may be offered the chance to visit the neonatal unit before your baby is born, to familiarise yourself with it or to meet professionals there. This is a personal choice for you to make as a family. For some families it helps them become familiar with the unit before the birth, but for some families it may cause anxiety.  It is perfectly fine to make the choice that is best for you.

Being in the neonatal unit with your baby can be an emotional and stressful time. It is very important to ensure you have practical and emotional support during this time.

The charity Bliss supports families whose babies are born requiring neonatal care.  They have a wealth of information on their website about all aspects of caring for a baby who is unwell. There is a comprehensive section on what to expect of your time in hospital covering topics including:

• What to expect in a neonatal unit
• Who's Who of professional staff
• Information about testing
• Support for parents while in the unit

Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.