Baby Loss Awareness Week
At SOFT UK, we support families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome). Many of our community have experienced the heartbreak of baby loss and this week, we join with others across the UK to raise awareness and share memories.
Grieving the loss of a baby is deeply personal. There’s no right way or right timeline. But here are some things that may help during this week and beyond:
Give yourself permission to grieve
You don’t have to be “strong.” Allow yourself to cry, remember, talk, or simply be still. Grief comes in waves, and every emotion is valid.
Create space to remember
Light a candle, plant a flower, write a letter, or create a memory box. Small habits can be comforting ways to honour your baby’s memory.
Reach out for support
Whether it’s a loved one, one of our support groups, or another parent who understands, talking can bring comfort.
Take care of yourself
Grief can be exhausting. Rest when you need to, eat when you can, and seek professional help if you’re struggling to cope. It’s ok to ask for support.
Remember you are not alone
Every story matters. Every baby matters. And this week, across the country, thousands of candles will be lit to show that none of us grieve in isolation.
What SOFT UK Is Doing This Week
Throughout Baby Loss Awareness Week 2025, SOFT UK will be honouring babies and supporting families.
Symbols of Love Campaign
This year, we want to honour our Trisomy babies by bringing their names and symbols together in one beautiful community illustration, a shared symbol of love and remembrance.
To take part: Share your baby’s name and a symbol that represents them (perhaps a flower, bird, feather, or one of the special signs you look for). At the end of the week, we’ll release a downloadable copy of the completed illustration for you to treasure.
You could even get siblings involved by colouring it in or spotting their sibling’s name, a gentle, family-friendly way to remember and connect.
Wave of Light Support Call – 15 October, 7pm
Join SOFT UK and families across the world for the Wave of Light. Light a candle at 7pm to remember our loved ones, and if you wish, join our support call for a quiet, caring space of reflection and shared remembrance.
Symbols of Love tealight
We are sending out our own Symbols of Love tealights to members of our baby loss community, a small gesture of care and remembrance from SOFT UK to you.
If you would like to receive one, please email paige@soft.org.uk with your name and address, and we’ll send your tealight to you with love.
Ongoing Support from SOFT UK
Our Support Line is open Monday to Friday, offering a listening ear for anyone affected by Trisomy conditions, diagnosis, or baby loss. You can also find a wide range of bereavement support resources on our website, from coping guides to stories from other parents who understand.
If you need someone to talk to, please reach out.
