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Baby Loss Awareness Week

SOFT UK is proud to be a member of the Baby Loss Awareness Week Alliance 2019.  From 9th-15th October we will remember all the babies lost during pregnancy, at birth and in the neonatal period.  

Sadly the  majority of pregnancies affected by Trisomy 13 and Trisomy 18 still end in bereavement during this period.  Therefore the issue of Baby Loss is very important to our members and something we are keen to raise awareness of. 

In the UK 1 in every 1500 pregnancies will be affected by Trisomy 18 and 1 in every 4000 will be affected by Trisomy 18. Around 70% of Trisomy 18 pregnancies and 50% of Trisomy 13 pregnancies will end in miscarriage or stillbirth. Of the babies born alive, over 85% will not reach their first birthday. 

During Baby Loss Awareness Week we take time to remember all the Trisomy Babies gone too soon and give their families the space, time and opportunity to remember them in whatever ways they choose.  

During the week we will be raising awareness through our social media accounts, fundraising with Visufund and taking part in the Global Wave of Light on 15th October. 









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Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.