Changing The Narrative

We’ve all heard language throughout our rare experience that has shaped our perspective, either in a negative or positive way. This year, SOFT UK are launching a campaign to draw a focus on the impact of language, during and beyond diagnosis, and aim to highlight how important it is.

Throughout the year, we will be changing the narrative around phrases, language delivery, and assumptions, with the aim of helping to make a positive change for families in the future.

If you would like to share, then please get in contact with us at contact@soft.org.uk with a video, audio clip, or written quote to help us build a library of voices and experiences. Ideally we want to hear the phrase, expression, or experience that impacted you, and how it could be changed to make it a more inclusive and positive experience.

You can find the full page here: https://www.soft.org.uk/changing-the-narrative