SOFT UK Trisomy Awareness Month 2026

Written By Shaun Dowdall

March is Trisomy Awareness Month — a time to come together as families, friends, professionals, and supporters to raise awareness of Trisomy 13 (Patau’s syndrome) and Trisomy 18 (Edwards’ syndrome), to share real experiences, and to celebrate the strength and love within our community.

At SOFT UK, Trisomy Awareness Month is always something special. It’s a chance to amplify family voices, share knowledge, build connections, and ensure that no family facing a trisomy diagnosis feels alone.

This year, we have so much to share — from community events and family stories to new resources and exciting opportunities ahead.

Awareness Month Events

Living with Trisomy Call
3 March • 19:30
A welcoming space for families living with Trisomy 13 or 18 to connect, share experiences, and support one another.

Email shaun.dowdall@soft.org.uk

Trisomy Awareness Meetup — Wales
7 March
An in-person opportunity to meet other families, build connections, and strengthen community in Wales.

Visit: https://www.soft.org.uk/events for more information

Expectant Parents Call
17 March • 19:30
A gentle, supportive session for families currently expecting a baby with Trisomy 13 or 18.

Email shaun.dowdall@soft.org.uk

Coffee With SOFT
24 March • 19:30
An informal, friendly online catch-up open to all members of the SOFT UK community.

Email shaun.dowdall@soft.org.uk

What to Look Forward to This Month

Throughout March, we’ll be sharing and releasing:

  • New family and professional resources

  • Real family stories and lived experiences

  • Podcasts featuring parents and community voices

  • New videos and awareness content

  • Informative posts about Trisomy 13 and 18

  • A very exciting fundraising announcement — including our London Marathon 2027 places reveal

How You Can Get Involved

Last Trisomy Awareness Month, together we reached over 105,000 people with awareness and support messages. This year, we hope to reach even more families — and you are a vital part of that.

You can help by:

  • Liking, commenting on, and sharing SOFT UK posts

  • Sharing your own photos and stories and tagging SOFT UK

  • Joining us to share your experience on a podcast or video

  • Attending our events — online or in person

  • Setting up a fundraiser — your own or as part of our Awareness Month campaign

Why Fundraising Matters This Year

Your donations and fundraising make our work possible — and 2026 is a particularly important year for awareness.

SOFT UK is expanding its outreach and professional education, including:

  • Engagement at the Scottish Parliament

  • Presence at the Journal of British Midwifery Conference in England

  • Increased family support and awareness activities across the UK

Fundraising during Trisomy Awareness Month helps us bring family voices into professional spaces — changing understanding, improving support, and building a more informed future for families affected by Trisomy 13 and 18.

Join our fundraiser here:

JustGiving: https://www.justgiving.com/campaign/tam2026

Facebook: https://tinyurl.com/2pwuufya

Donate here: https://donate.justgiving.com/charity/soft-uk/donation-amount

Together, We Raise Awareness

Trisomy Awareness Month is about visibility, truth, and connection.
It’s about ensuring families are heard.
It’s about sharing real lives and real love.
It’s about building understanding — together.

Thank you for being part of the SOFT UK community.



Shaun Dowdall
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