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Trustee opportunity


SOFT UK is a UK wide charity that provides information and support to families affected by Trisomy 13, Trisomy 18 and related conditions.  We provide support at all stages of a family’s journey; expecting a baby, caring for a child, ending a pregnancy, coping with bereavement and beyond.

The Board is responsible for the overall governance and strategic direction of the Charity and for developing its aims, objectives and goals in accordance with its members needs and the Trust’s Deed.  The Board is further responsible for ensuring that in all its decision-making, the needs of the whole organisation remain its overriding concern.

SOFT UK Trustees are drawn largely from parent / family members or other professionals with skills complimentary to the objectives of the charity.

As the position carries statutory responsibility, please contact Jan Fowler on the details below for a full information pack and Role Description.

What we're looking for

  • a commitment to the mission of SOFT UK
  • a willingness to devote the necessary time and effort
  • integrity
  • empathy and sensitivity
  • a willingness to contribute views and experience
  • an understanding and acceptance of the responsibilities of being a trustee.
  • an ability to work effectively as a member of a team and to take decisions for the good of SOFT UK.

What you can gain from this opportunity

  • Our volunteers report a huge range of personal benefits, from meeting new people and enjoying using their skills, to feeling fulfilled helping other families
  • Volunteering can be a useful addition to CVs, portfolios or helpful experience if you’re thinking about a career change.
  • Many volunteers choose to benefit from training and development opportunities.

Contact Details

  • Contact: Jan Fowler, Chair
  • Email:
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Registered Charity: 1002918 (England and Wales) SC043341 (Scotland). Copyright © 2005 – 2017 SOFT UK. All rights reserved.