Scan this QR code to save this page for later!

A QR code with black squares on a white background.

What We Do

Six women standing together indoors in front of a banner that reads 'SOFT UK,' smiling for the camera.

SOFT UK Is here to support you. Our mission is to provide support and information to all those who are affected by Patau’s syndrome (Trisomy 13) or Edwards’ syndrome (Trisomy 18) and their related disorders. To support families, healthcare professionals and carers  

We support families and healthcare professionals, offering peer support, bespoke training, and family events.

Bespoke Training and Webinars

At SOFT UK we aim to support health care professionals in a number of ways, from bespoke training, to larger events including webinars. Our focus is to explore a range of topics that will affect your team and day to day working, exploring family lived experiences and pairing these with presentations and training from our professional advisors.

To find out more, contact Sonia.sankoli@soft.org.uk

Collage of photos from an indoor event, including a display of children's photos on a wall, people presenting with a quilt, a woman giving a speech at a lectern, and tables with documents and a candle.

  • Yes we do! We have some incredible volunteers based in Northern Ireland who all have their own lived experience of Trisomy.

  • We aim to host an annual event in Northern Ireland which takes place in February. We also host smaller coffee meetings for our community. Feel free to ask us for more information.

  • That all depends on your individual needs. We have delivered a range of different training topics, from language during a diagnosis, to the complexities of supporting a family with anticipatory grief. Reach out to discuss how we can support you or your team.

  • We have a dedicated WhatsApp and Facebookgroup for families based in Northern Ireland. This is monitored a d attended by our fantastic volunteers. We also host coffee mornings and an annual Northern Ireland specific event.