Trustee Opportunity
SOFT UK is a UK wide charity that provides information and support to families affected by Trisomy 13, Trisomy 18 and related conditions. We provide support at all stages of a family’s journey; expecting a baby, caring for a child, ending a pregnancy, coping with bereavement and beyond.
NHS Collaboration Videos
After almost a year, the NHS has published a video to support expectant parents facing a diagnosis of Edwards' syndrome. The video was created in collaboration with SOFT UK, and we are incredibly thankful to our community who helped to make this a reality. The project began when it was identified that there was a lack of information being made available to expectant parents. The aim was to create a video that talked about different families journeys and experiences, providing a more human insight into a pregnancy affected by Trisomy 18.